Be the change…See you on 10/14

I had another whole post worked out in my mind, indeed even started typing it up. But this nagging thought wont let me post it because I have something more urgent to say.

I try to live by the saying- “Be the change you wish to see in the world”. I love that motto. Love the premise that if something is wrong with our world, our country, our state, our healthcare system, our consumerism, that we have the power to change it. But we cant, I cant, do it alone.

Recently here in MA the workers and customers of Market Basket took a stand. Together they boycotted a favored grocery store and went out of their way to picket, drive longer, spend more, in the interest of the greater good. One worker, one customer could not have made that impact, but when we all took a stand together it was our togetherness that mattered.

On Tues 10/14 at 11 am there is a direct action protest planned in front of the Department of Public Health building (250 Washington St, Boston MA). This protest is a chance to stand together and say that the patients that have been left without access for 2 YEARS will not stand for it anymore. Their rights are being violated, their suffering is being prolonged and officials have yet to respond to previous calls of action with any urgency or empathy for the patients they are denying.

There is no doubt about it, Haley is suffering without access to medical marijuana. She has endured more than 90,000 seizures just since the day medical marijuana was voted legal here in MA. She has no pharmaceutical options left, she has exhausted every single one. The state has accepted more than 7 million dollars in fees from dispensary applicants and yet there is not a dispensary open. There isn’t even a way to register my daughter as a legally recognized patient with the DPH.

But it’s not just Haley who is suffering. It’s the 8500 other children in MA that the DPH estimates have uncontrollable seizures. It’s the patients with chronic pain, TBI’s, PTSD, fibromyalgia, arthritis, MS, ALS, migraines, lyme, alzheimers and so many other conditions that can be treated with medical cannabis. It’s the 2,000 people that are estimated to be legal medical cannabis patients here in MA that have nowhere to access consistent, lab tested medicine.

I NEED YOU. I need your help. I need you to respond to this call to action in record numbers.Take the morning off, get a sitter. I can’t save my daughter alone. It will take more than my voice, it will take yours. To sit back and feel empathy isn’t enough anymore. For 2 years we have waited for this process to unfold. We can’t wait any longer. Lives are being lost.

Please, please come and help us help each other. I don’t want to grieve my daughter, I just want to save her.

Be the change you wish to see in the world.

2 thoughts on “Be the change…See you on 10/14”

  1. We will be there. My son has dravet syndrome and seizures and pharm meds are destroying my little boys life . I have asked every doctor we have seen and they avoid it like the plague. Our kids need a chance at life…

    Like

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